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Home : Health/Medical/Dental : Major Diseases/Conditions : Spina Bifada

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The following links are in English

  • Spina Bifida Fact Sheet: National Institute of Neurological ...
    Spina bifida, which literally means “cleft spine,” is characterized by the incomplete development of the brain, spinal cord, and/or meninges (the protective covering around the brain and spinal cord). It is the most common neural tube defect in the United States—affecting 1,500 to 2,000 of the more than 4 million babies born in the country each year.

  • Children with Spina Bifida
    Children with Spina Bifida: A Resource Page for Parents & Professionals

  • Living with Spinal Bifida
    A site for families of spinal bifida children.

  • SBH Queensland
    The target group for the SBH Queensland is people who have spina bifida, hydrocephalus, other neural tube defects and their families and carers.

  • Spina Bifada-Facts
    Neural tube defects (NTDs) are serious birth defects that involve incomplete development of the brain, spinal cord and/or protective coverings for these organs. There are 3 types of NTDs: anencephaly, encephalocele, and spina bifida.

  • Spina Bifida Association of Delaware
    The Spina Bifida Association of Delaware is a NON-PROFIT Organization.

  • Spina Bifida / Myelodysplasia Index
    Links to information about spina bifida, myelodysplasia, tethered spinal cord, spinal lipomas, myeloschisis, split cord malformation, and diastematomyelia.

  • Spina Bifida Pediatric Neurosugery
    Spina bifida is one of the most common birth defects compatible with life. Technically it means an open spinal column, but has come to specifically relate to those instances when not only is the spinal column open, but the spinal cord is incompletely formed and is exposed to the air, the aperta form. The much more common form is the closed or occulta f orm which is probably of little significance and seen widely in the population, The spinal cord forms in the first few weeks of gestation. In addition to genetic and environmental associations, it is felt that folate deficiency may be an underlying factor in its development. Besides the failure of the spinal cord to form and close properly, other defects can occur in the development of the nervous system. These include hydrocephalus, syringohydromyelia and Chiari malformations. In addition there are poten tial disturbances with the bowel and bladder function, both extremity and spine related problems and respiratory and swallowing difficulties. These problems a

  • Spinal Bifida Fact Sheet
    Spina Bifida means cleft spine, which is an incomplete closure in the spinal column. In general, the three types of spina bifida (from mild to severe) are: 1. Spina Bifida Occulta: There is an opening in one or more of the vertebrae (bones) of the spinal column without apparent damage to the spinal cord. 2. Meningocele: The meninges, or protective covering around the spinal cord, has pushed out through the opening in the vertebrae in a sac called the "meningocele." However, the spinal cord remains intact. This form can be repaired with little or no damage to the nerve pathways. 3. Myelomeningocele: This is the most severe form of spina bifida, in which a portion of the spinal cord itself protrudes through the back. In some cases, sacs are covered with skin; in others, tissue and nerves are exposed. Generally, people use the terms "spina bifida" and "myelomeningocele" interchangeably.

  • The Spina Bifida Information Center
    At The Spina Bifida Information Center, people with Spina Bifida from around the world can find information and resources pertaining to Spina Bifida, meet new people, share their stories, share advice and most of all just have a good time.

  • Understanding Spina Bifida
    Spina bifida ("open spine") is a birth condition characterized by an incomplete closure of the spine. Children born with spina bifida may have varying degrees of muscle paralysis, bladder and bowel problems, loss of skin sensation and spine and limb problems.

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