Growth Hormone Treatment and Prader-Willi Syndrome . Based on current medical knowledge, the Scientific Advisory Board of the Prader-Willi Syndrome Association (USA) has drafted and approved this policy statement to guide health care providers in the use of GH treatment in patients with Prader-Willi syndrome (PWS).
Prader-Willi Alliance of New York The Prader-Willi Alliance of New York, Inc., a chapter of the Prader-Willi Syndrome Association (USA), represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
Prader-Willi California Foundation The mission of the Prader-Willi California Foundation is to provide to parents and professionals a state network of information, advocacy, and support services to expressly meet the needs of children/adults with Prader-Willi Syndrome and their families.
Prader-Willi Syndrome Description and resources for Prader-Willi which is a a rare genetic disorder that is predominantly caused by the absence of genetic material on the long arm of the chromosome 15 contributed by the father.
Prader-Willi Syndrome Association of Ohio PWSA (Ohio) is a chapter of PWSA (USA) and is a non-profit, tax-exempt organization dedicated to providing understanding and awareness of Prader-Willi syndrome, to supporting affected persons and families, to improving the quality of their lives, and to encouraging research into the causes, management, and cure of Prader-Willi syndrome
Prader-Willi Syndrome.-Health Care Guidelines Health Care Guidelines For Individuals With Prader-Willi Syndrome.The following guidelines are designed to be a resource for pediatricians, family practitioners, internists, geneticists, nurses, nutritionists, psychologists, allied health care providers, educators, and service agencies and as an aid to families and other caregivers.
The Prader-Willi Syndrome Association (USA). Many resources and lots of information from The Prader-Willi Syndrome Association which was organized in the United States in 1975 to serve as an international vehicle of communication about Prader-Willi syndrome (PWS), a genetically based developmental disability