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Home : Child Development : Special Needs Child : Advocacy Groups

Web Pages

The following links are in English

  • child safety device
    a unique child safety device that helps prevent abductions and drowning of our nations children.and helps keep our nations children safe and secure

  • About Face U.S.A.
    AboutFace U.S.A. is a national voluntary health organization dedicated to providing individual and family support to those who have facial differences.

  • Advocates for Children Organization
    For over 25 years Advocates for Children of New York, Inc. (AFC) has worked in partnership with New York City's most impoverished and vulnerable families to secure quality and equal public education services. AFC works on behalf of children from infancy to age 21 who are at greatest risk for school-based discrimination and/or academic failure.

  • American Hyperlexia Association
    AHA is dedicated to the advancement of the education and general welfare of children with hyperlexia. We advocate and encourage research related to hyperlexia and seek to assist families of children with hyperlexia in accessing appropriate services.

  • American Society for Deaf Children
    ASDC was founded in 1967 as a parent-helping-parent organization. Today, ASDC is an national, independent non-profit organization whose purpose is providing support, encouragement, and information to families raising children who are deaf or hard of hearing.

  • Attachment Disorder Network
    Serving children and families affected by Attachment Disorder.

  • Autism Conferences
    Autism Conference Board. This board is for the public posting of autism related conferences.

  • Autistic Kids.org
    The mission of Autistic Kids is to provide information on products, services, and other resources for families of autistic children of all ages. It is our intent to provide relevant informaiton you can use right away.

  • Because I Love You
    Because I Love You (BILY) is a non-profit organization dedicated to supporting parents with troubled children of any age.

  • Camps for Kids with Developmental Disabilities
    Provides a list of Developmental Disability Camps grouped according to states, countries, etc.

  • Center for Effective Collaboration and Practice
    Improving Services to Children and Youth with Emotional and Behavioral Disorders.

  • Center for Innovations in Special Education
    COSE Mission is to provide professional development services and resources for those who ensure all learners achieve their potential

  • CHERAB Foundation, Inc
    A non-profit organization which provides a support group, articles, and links about children who are late talkers or diagnosed with apraxia.

  • Cherubs
    Welcome to CHERUBS- The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support.

  • Child, Adolescent and Family Branch
    The Child, Adolescent and Family Branch of the federal Center for Mental Health Services promotes and ensures that the mental health needs of children and their families are met within the context of community-based systems of care.

  • Child and Adolescent Bipolar Foundation
    Early intervention and treatment offers the best chance for children with bipolar disorder to achieve stability, gain the best possible level of wellness, and grow up to enjoy their gifts and build upon their strengths.

  • CIBRA-Children Injured By Restraints and Aversives
    CIBRA is a fledgling organization in the first stages of development. Founded by families whose autistic children were severely traumatized in well known programs of discrete trial (ABA)and other various settings utilizing dangerous behavior modification techniques, we are an integral part of the fast growing civil rights movement in the autism community.

  • CLIMB (Children Living with Inherited Metabolic Diseases),
    Climb is a national umbrella organisation working on behalf of children, young people and families affected by metabolic disease.

  • Congenital Heart Anomalies, Support, Education, and Resources (CHASER)
    Congenital Heart Anomalies, Support, Education, and Resources (CHASER) is a not-for-profit voluntary health organization whose primary purpose is patient and family support for children with congenital heart disease and acquired heart disorders.

  • Council of Parent Attorneys and Advocates (COPAA)
    An independent, nonprofit, tax-exempt organization of attorneys, advocates and parents established to improve the quality and quantity of legal assistance for parents of children with special needs and disabilities.

  • Defence Special Needs Support Group
    The Defence Special Needs Support Group is the only Australian charity dedicated to providing support, information and assistance to Australian Defence Force families who have someone with special needs.

  • Division for Early Childhood, Council for Exceptional Children

  • Dyslexia Parents Group
    The Dyslexia Parents Group - Dyslexia test for children, online Dyslexia Magazine for Parents, and a free Dyslexia Advice Line.

  • Education-A-Must Inc
    Education-A-Must Inc provides advocate services for children with special needs. Helping students with learning disabilities. Serving New England.

  • Education-A-Must Inc.
    Education-A-Must Inc. is a nonprofit organization providing advocate services for the child or youth with physical, emotional, behavioral or learning disabilities. Our goal is to assist parents and caregivers in finding help for the child with special needs

  • Expressive Communication Help Organization
    Welcome to the Expressive Communication Help Organization. Toronto, Ontario Canad.

    FACES: The National Craniofacial Association is a not-for-profit organization whose purpose is to provides families with financial assistance for travel to major medical centers for reconstructive surgery; offer information and support to affected families; and increase public awareness and understanding of facial abnormalities.

  • Family & Advocates Partnership for Education
    Welcome to the Family & Advocates Partnership in Education (FAPE) Web site. The Partnership is a new project which aims to inform and educate families and advocates about the Individuals with Disabilities Education Act of 1997 (IDEA 97).

  • Family Fund Trust UK
    The Family Fund Trust is an independent organisation registered as a charity. Our purpose is to ease the stress on families in the UK who care for severely disabled children under 16, by providing grants and information related to the care of the child.

  • Family Village-Autism
    Numerous autism information links from the Family Village Website.

  • Federal Interagency Coordinating Council (FICC),
    A convenient storehouse of information for parents of children with disabilities, focusing on the efforts of the Federal Interagency Coordinating Council (FICC). The FICC facilitates federal, state and local activities related to serving infants,toddlers, and preschoolers, ages birth through 5, who receive services. under the Individuals with Disabilities Education Act (IDEA), as well as other federally funded programs such as health care, child care and social services

  • Federation for Children
    The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. We can help! Organized in 1975 as a coalition of parent groups representing children with a variety of disabilities, the Federation operates a Parent Center which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs

  • Flower family website -Rett Syndrome
    By creating this website, it is my hope that Rett Syndrome can more and more, be brought to public attention - especially now that the GENE HAS BEEN FOUND - that the researchers out there will look at a beautiful little girl like mine and become interested enough to think that RS is an important disorder to study and to *cure.

  • Genetic Alliance
    Genetic Alliance is a consortium of national voluntary organizations for individuals and families who have genetic disorders. Dedicated to fostering a partnership between genetic consumers and professionals, the Alliance provides referrals to support groups, services, and genetic counseling on its toll-free telephone line

  • Henry Spink Foundation
    The Henry Spink Foundation is an independent charity created to help families of children with severe disabilities of all kinds. We provide information on conventional and complementary/alternative medicine, therapies and research relating to a very wide range of physical and mental disorders.

  • InternAUT Home
    International Autism Advocacy Organization. Many links to news regarding autism.

  • Island Dolphin Care
    Island Dolphin Care is a non-profit organization developed to help children and their families who are dealing with various developmental, physical, and/or emotional difficulties.

  • Kid's Together,Inc.
    Kid's Together, Inc. is a non-profit organization co-founded by parents, and organized by volunteers. The Goals of Kids's Together, Inc. include a desire to remove barriers that exclude people with disabilities. We support the belief that children with disabilities, like all children, have the need to be welcomed, cherished and embraced in our communities

  • Learning Disabilities/AD/HD
    Special needs, Learning Disabilities/AD/HD camps for kids by region.

  • Let's Face It USA
    Let's Face It USA is a nonprofit network that links people with facial disfigurement and all who care for them to resources that can change their lives.

  • Magic Foundation for Childrens Growth
    MAGIC began as a vision of these families that became a reality. MAGIC has grown with our children from a kitchen table; to a spare bedroom; to the leading organization of growth disorders in this country!!

    The Massachusetts Association of Special Education Parent Advisory Councils (MASSPAC), formerly known as PAC COALITION, is a growing grass roots organization for Special Education Parent Advisory Councils, parents and supporters .

  • Mother's From Hell-Special Needs Advocacy
    Mothers From Hell 2 (MFH2) is a grass-roots parent advocacy group, fighting for the appropriate education, community acceptance, desperately needed services, rights of, and entitlements for individuals with disabilities. We offer support and empowerment for families of individuals with special needs.

  • National Association for Children With Autism
    An association founded by parents and professionals working to forward programs to effectively diagnose and treat young children with autism and related disorders.

  • National Center for Early Development & Learning
    (NCEDL), focuses on enhancing the cognitive, social and emotional development of children from birth through age eight.

  • National Early Childhood Technical Assistance System
    NECTAS is a national technical assistance consortium working to support states, jurisdictions, and others to improve services and results for young children with disabilities and their families.

  • National Foundation for Facial Reconstruction
    Supporting the Treatment of Children with Craniofacial Deformities

  • National Information Clearinghouse on Children Who Are Deaf-Blind
    DB-LINK is a federally funded information and referral service that identifies, coordinates, and disseminates (at no cost) information related to children and youth who are deaf-blind (ages 0 to 21 years). Four organizations have pooled their expertise into a consortium-based clearinghouse.

  • National Sports Center for the Disabled
    Provides therapeutic recreation and competitive opportunities for children and adults with disabilities. Activities include skiing, horseback riding, camping, rock climbing, sailing, plus education and outreach programs.

    The Office of Special Education and Rehabilitative Services (OSERS) supports programs that assist in educating children with special needs, provides for the rehabilitation of youth and adults with disabilities, and supports research to improve the lives of individuals with disabilities.

  • Ontario Association of Children Rehabilitation Services
    The Ontario Association of Children's Rehabilitation Services (OACRS) promotes a province-wide, co-ordinated, community-based service system for children and youth with special needs and their families, and supports its member centres to achieve responsive, family-centred care.

  • Parents United Together
    Parents United Together is a group of parents of children with a wide range of disabilities united on a common issue: Education It is our belief that ALL children should receive a quality education that will have value to them when they leave high school. The mission of Parents United Together is to provide parents and professionals with information relatingto children with disabilities and special needs and to encourage them to become active in activities and events which impact our children's well-being and lives.

  • Pediatric Therapy Network
    Pediatric Therapy Network is a non-profit children's therapy center which was created by a group of therapists, parents and other professionals committed to providing quality services for children with special needs. Our Mission is to help children by laying a solid foundation for future growth and development by enhancing function and fostering independence through innovative therapeutic programs.

  • Pennsylvania-Education Law Center
    (ELC-PA) is a non-profit legal advocacy organization dedicated to insuring that all of Pennsylvania's children have access to a quality public education.

  • Pennsylvania's Initiative on Assistive Technology
    PIAT's priority activities include the development, implementation, and monitoring of laws, policies, practices, and organizational structures to improve access to assistive technology for all Pennsylvanians with special needs and disabilities .

  • Positive Behavioral Interventions and Support Technical Assistance Center
    The Center has been established by the Office of Special Education Programs, US Department of Education to give schools capacity-building information and technical assistance for identifying, adapting, and sustaining effective school-wide disciplinary practices.

  • Reaching Potentials,Inc.
    Is a private, non profit organization established by a small group of parents dedicated to supporting a broad spectrum of services to individuals with autism and their families.

    We are an independent, not-for-profit organization that provides information and referral, case management and support, individual and systemic advocacy, parent and professional training, library and information services to New York City parents and caregivers of children with disabilities and special needs and to the professionals who work with them.

  • Royal Family Kid's Camp
    Royal Family Kid's Camp is a one week overnight camp held in Bellingham and designed to meet the unique and overwhelming needs of abused and neglected children.

  • SchwabLearning.org
    The Schwab Foundation for Learning is a nonprofit organization that is dedicated to "helping kids with learning differences be successful in learning and life." The Foundation, based in San Mateo, CA, has collaborative ties to research and advocacy organizations nationwide, including the Coordinated Campaign for Learning Disabilities and the National Institutes of Health.

  • Selective Mutism Group
    This support has cemented our commitment to promote research and awareness of "Selective Mutism". There are too many that know too little about this disorder. Our goal is to change this.

  • Self Direction
    Self Direction is a disability led and run charitable organisation supporting a wide variety of people related issues, providing counselling, advocacy, advice, guidance, support and training to the community including offering City & Guilds accredited IT training.

  • Sensory Integration International
    Sensory Integration International (SII) is a non-profit, tax-exempt corporation concerned with the impact of sensory integrative problems on people's lives. We bring together professionals, individuals, families, and researchers who want to know more about sensory integration

  • Sensory Integration Resources
    Our vision is to help an international community of families and colleagues improve the quality of life for children, adolescents and adults with sensory integration dysfunction (DSI). Our mission is to post quality resources about sensory integration for individuals with SI problems as well as the family members, friends, therapists, physicians, teachers and researchers who care about and work with them.

  • Sidran Traumatic Stress Foundation
    Many children who have experienced or witnessed violent or traumatic events suffer severe and disabling symptoms of distress. The developmental, emotional and psychological injuries caused by violence and trauma are frequently underestimated. Sindra is a nonprofit charitable organization devoted to education, advocacy, and research to benefit people who are suffering from injuries of traumatic stress.

  • Special Education Legal Rights
    Provides informational resource for parents and school personnel advocating for children with learning disabilities, Attention Deficit Disorder, autism, Down Syndrome, cerebral palsy, behavior/emotional Disorder, and other special needs.

  • Special Needs Advocate for Parents (SNAP)
    Provides information and resources to families of special needs kids of all ages.

  • Special Needs and Special Gifts. Learn parent advocacy
    Learn how to be an effective advocate for your child with disabilities. Many articles for self help.

  • Superkids
    Superkids is a newsletter for families and friends of children with limb differences. It is published twice a year and is free to interested families and professionals. The newsletter offers timely information and support to those affected by limb differences.

  • TASH-Advocacy
    TASH is an international association of people with disabilities and special needs, their family members, other advocates, and professionals. When TASH was started in 1974, it was called the American Association for the Education of the Severely / Profoundly Handicapped and went by the acronym: AAESPH. In 1980 the name was changed to The Association for the Severely Handicapped, reflecting TASH's broader mission but kept its original acronym.

  • The Advocacy Center
    The Advocacy Center is a non-profit organization that provides education, advocacy and support for individuals with developmental disabilities, traumatic brain injuries, and their families. Our purpose is to ensure that individuals' rights are respected and to enhance the quality of life for individuals with disabilities.

  • The Alexander Graham Bell Association for the Deaf and Hard of Hearing
    The Alexander Graham Bell Association for the Deaf and Hard of Hearing is one of the world's largest membership organizations and information centers on hearing loss and the auditory approach. AG Bell focuses specifically on children with hearing loss, providing ongoing support and advocacy for parents, professionals and other interested parties.

  • The Andrew Project
    The Andrew Project's Resource Directory is a listing of various organizations that deal with issues of childhood disabilities. The book is broken up into two sections, General Resources and Specific Disabilities. At this time only our General Resources section is available online.

  • The Children's Craniofacial Association (CCA)
    The Children's Craniofacial Association (CCA) is a not-for-profit organization dedicated to improving the quality of life for individuals with craniofacial disorders and their families

  • The Children With Disabilities Web site
    The Children With Disabilities Web site offers families, service providers, and other interested individuals information about advocacy, education, employment, health, housing, recreation, technical assistance, and transportation covering a broad array of developmental, physical, and emotional disabilities.

  • The Consortium for Citizens with Disabilities
    A coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society

  • The Council for Children with Behavioral Disorders
    CCBD is an international professional organization committed to promoting and facilitating the education and general welfare of children and youth with behavioral and emotional disorders.

  • The EDLAW Center
    Resource for disabled (special needs) children and their parents, providing information concerning federal and state education laws, parent advocacy, referrals, and late breaking information.

  • The Hanen Centre
    The Hanen Centre, a not-for-profit charitable organization with an international outreach, is committed to helping young children with - or at risk of developing - language delay learn to communicate and interact effectively

  • The National Autism Registry(NARY)
    The National Autism Registry(NARY) was founded in 1999. The purpose of this organization is to help families cope with some of the difficult issues that occur when raising an individual with autism as well as improve the quality of life for the autistic person themselves.

  • The National Council on Disability (NCD)
    NCD's overall purpose is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature of severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society.

  • The National Parent Network on Disabilites
    The mission of the National Parent Network on Disabilities (NPND) is to provide a presence and national voice for ALL families of children, youth and adults with disabilities and special needs.

  • The Parent Advocate Network
    A parent advocacy and support group dedicated to providing leadership in the field of children's mental health and developing the necessary human resources to meet its goals, along with many other family support goals.

  • Timiskaming Child and Family Services
    Timiskaming Child and Family Services strives to advocate for and provide coordinated, quality services for children, families and individuals. Our primary service focus is on children most in need of social, emotional and behavioral intervention, and protection from abuse and neglet.

  • Who Will Teach My Child?
    Useful Web site helps guide American and Canadian parents of children with special needs to navigate the educational systems, and the federal and state programs established to help their kids.

  • Williams Syndrome Foundation
    Promote the investigation of the causes and appropriate treatment of Williams syndrome and other conditions which may be related to or associated with Williams syndrome. Encourage and sponsor medical research related to Williams syndrome and related disorders. Provide educational materials to the general public with respect to the syndrome and related disorders.

  • Worldwide Education and Awareness for Movement Disorders
    It is dedicated to promoting awareness of neurological movement disorders for the purpose of early diagnosis, appropriate treatment, and patient support. The primary focus of the program is to educate the health care community about movement disorder

  • Wrightslaw-Special Education Advocate
    Welcome to Wrightslaw! Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about effective advocacy for children with disabilities. You'll find hundreds of articles, cases, newsletters, and other information about special education law and advocacy in the Wrightslaw Libraries. (special needs)

  • Youth to Youth - Children With Disabilities
    The Children With Disabilities Web site offers families, service providers, and other interested individuals information about advocacy, education, employment, health, housing, recreation, technical assistance, and transportation covering a broad array of developmental, physical, and emotional disabilities.

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